As part of the National Institute for Health Research, we use the skills, knowledge and expertise of researchers, health and social care professionals, managers, commissioners and patients to conduct high quality research projects to find new ways of improving healthcare. Our aim is to ensure the results of the research are translated quickly and effectively into benefits for patients, the wider NHS and social care.

Please visit About Us for more information on the journey so far.


  • 03-2019

    This Sickle Cell Life

    Your expertise needed to support young people!

    We invite you as an expert in your field to join young people on April 2nd at an innovative and interactive event to help shape services of the future. The Royal College of Paediatrics and Child Health (RCPCH) is working with the London School of Hygiene and Tropical Medicine (LSHTM) on a project to transform understanding, awareness and knowledge about a the UK's most common inherited genetic disorder that has a huge impact on young people as they transition to adulthood and adult healthcare services in London and across the UK. We believe that in order to start the journey to creating lasting change, children, young people, families, patients, specialists, and stakeholders from a wide range of sectors such as yours need to be involved. 

     

    On April 2nd 2019 from 10am – 4pm, we will be running “This Sickle Cell Life”, sharing findings from the 3 year research programme conducted by LSHTM. We will then invite attendees with and without Sickle Cell / Thalassemia experience, to help co-produce a range of useful materials that can be used by your colleagues, peers and your sector to better understand how to support young people and families living with these conditions now and into adulthood. 

     

    The event will be interactive and workshop based, with young people, young patients, workers and decision makers from a range of backgrounds and disciplines. Attendees will have the chance to learn about what young patients need from services such as health, education, leisure and social care services to support their journey with Sickle Cell / Thalassemia whilst sharing their sector expertise to help develop messages and achieve hopes and wishes.

     

    It is important to the success of the project to have your insight as part of the day and we really hope you or a colleague will be able to join us.

     

    If you would like to find out more about the project, please check the Sickle Cell Life twitter or the Sickle Cell Life projectpage . I have also attached a team flyer for the Children and Young People’s Engagement Team at the RCPCH who lead the RCPCH&Us Network to ensure that children and young people are actively involved in shaping healthcare and policy across the UK.

     

    To confirm your attendance or suggest a colleague, please contact Emma Sparrow at RCPCH via and_us@rcpch.ac.uk by March 11th.

    Posted 25 Mar 2019, 04:53 by Derryn Lovett
  • 01-2019

    & Early Years

    J.O. Warner OBE MD FRCP FRCPCH FMedSci, academic lead for our Early Years theme and Professor of Paediatrics Imperial College.

    "The NHS Long-term plan published in January 2019 emphasises the need to move towards the creation of “Integrated Care Systems” involving coordination between multiple agencies including; primary and specialist care, physical and mental health services, and health with social care. NIHR CLAHRC Northwest London’s Early Years theme’s research over the last 10 years has developed and implemented integrated care pathways for children with allergic disease and sickle-cell disease. Working with patients and carers we have developed disease specific Patient Reported Experience Measures (PREMs) which have been used to guide quality improvement initiatives.

    The plan also focuses on early life often now known as the first 1000 days from conception to 2 years of age. While the main emphasis in the long-term plan is on mental health this period of early life offers many opportunities for prevention and early intervention to influence long term health outcomes and need for medical care. Our early year’s theme aims to “Promote a healthy start for lifelong health and wellbeing.”  We are researching health education programmes for expectant parents to improve immunisation up-take; breast feeding; recognition and home management of minor illness. Other studies are improving management of pregnancies of unknown origin; involving parents in the management of their infants while in neonatal intensive care; trialling interventions for maternal anxiety in pregnancy and strategies to improve pathways of management for preschool children with common acute problems."
    Posted 21 Feb 2019, 03:00 by Derryn Lovett
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