The Brian Turley Award for Patient and Carer Involvement

This inaugural award was made in 2017 in memory of Brian Turley, a dedicated and committed patient advocate and disability rights campaigner. Brian became involved with NIHR CLAHRC NWL through ‘My Medication Passport’. Together with his mother Margaret, he was a passionate ambassador for the ‘My Medication Passport’.


Brian strongly believed the passport was a way to involve and engage people in their own care and to initiate better conversations with clinicians and other services including the police and the criminal justice system.

 

Sadly Brian died unexpectedly in February 2016 and in honour of his contribution and as a way to sustain his values and commitment to patient engagement and involvement we extended the award in 2018 to all three CLAHRC programmes in London and introduced two new categories.

The three award categories are:

  • Influence Award (for dedicated patients, service users and carers)
  • Team Award (for project teams dedicated to working with patients, service users, carers, families and communities )
  • Researcher Award (for early career researchers, PhD students, service user researcher and fellows)

 

The purpose of the awards is to celebrate and promote patient and carer involvement in healthcare research and improvement.

The awards:

·         Raise the profile of involvement

·         Showcase examples from practice

·         Promote reflection and shared learning

·         Discourage ‘tick box practice’


Previous Winners:
2017 ¦ 2018

2018 Winners

posted 2 Oct 2018, 08:35 by Cherelle Augustine   [ updated 2 Oct 2018, 08:49 ]

There were three award categories and fifteen entries from NIHR CLAHRC  funded and supported work across the Capital. Winners were awarded with an opportunity to work with graphic illustrator  Sandra Howgate to prepare a visual representation of their work to promote and share their story with others.

The award winners for 2018 were:

Influence Award

Sophia Kotzamanis with Simon Denegri OBE

Sophia Kotzamanis – a parent representative for BUDS [Better Use of data to improve parent satisfaction), an initiative aiming to improve the experience parents have when their baby is admitted to a neonatal unit.

About BUDS  

The BUDS project (Better Use of Data to Improve Parent Satisfaction) is a research driven improvement project to improve the experience of parents whose babies’ require neonatal care. BUDS is funded by the NIHR CLAHRC NWL and through an NIHR doctoral research fellowship award for the BUDS clinical lead Dr Susanna Sakonidou until December 2019. It is supported by BLISS (The National Charity for the Newborn UK) and the Imperial College Neonatal Research group and is based at the Chelsea and Westminster hospital.

Graphic Illustrator: Sandra Howgate


Sophia has since been awarded an NIHR CLAHRC NWL Improvement Leader Fellowship of which she will continue her work with BUDS to explore the feasibility and impact of a parent support role on parent experience in the neonatal unit.


Team Award

Susan Barber, IBD Team and Simon Denegri

St Mark’s Hospital Patient-Centred Inflammatory Bowel Disease (IBD) Care Model Team at London Northwest Healthcare NHS Trust – The team involved patients and the public in a programmes to improve outpatient monitoring for patients with Inflammatory Bowel Disease (IBD) by addressing the mismatch between ‘need’ and ‘access’ to services.

Graphic Illustrator: Sandra Howgate

The Patient-Centred Inflammatory Bowel Disease (IBD) Care Model Team were shortlisted for the BMJ Patient Partnership Award 2018 and are highly commended by BMJ for Patient Partnership. 


Researcher Award



Stuart Green, Public Health Research Fellow based at Imperial College London – Stuart was an integral part of a quality improvement initiative within a mental health trust which aimed to improve cardiometabolic screening of patients through the introduction of a comprehensive physical health assessment.


Graphic Illustrator: Sandra Howgate

2017 Winners: PREPARE Team

posted 2 Oct 2018, 08:34 by Cherelle Augustine   [ updated 2 Oct 2018, 08:41 ]

In 2017, the PREPARE team, based at St Mary’s Hospital in Paddington, were announced as the recipients of the first Brian Turley Award at NIHR CLAHRC NWL’s Spring Collaborative Learning Event. The PREPARE for Surgery project is a programme for patients undergoing oesophago-gastric surgery that aims to improve their surgical outcomes by improving their physical and mental well-being prior to and after their surgery. Each patient receives a personalised programme to match their individual needs, abilities and goals.


Left to right: Beenish Arfeen, Project Coordinator; Maria Halley, Perioperative Project Practitioner; Harvey Dickinson, Project Manager; Rashmi Chauhan, Patient; Venetia Wynter-Blyth, ‘Macmillan Nurse Consultant’; Jennifer Quan, Medical Student

On announcing the award winners the judges said: “This is a superb example of integrated, meaningful, well planned patient involvement which is central to the project. While PPI is often an added afterthought to projects, collaboration with patients is at the heart of PREPARE”.

The programme provides coaching and tailored support in the areas of:

  • Physical fitness
  • Respiratory exercises
  • Eating well
  • Psychological wellbeing
  • Asking about medications
  • Removing bad habits
  • Enhancing recovery
Patients are involved at a strategic level in the development of the PREPARE programme, working with the clinical team to co-design the structure and goals through formal workshops and informal interactions. An example of meaningful outcomes from patient involvement include the creation of a training clinic 1-2 weeks prior to surgery to teach patients and their carers on home jejunostomy feeds. This replaced post-surgery in-hospital training which patients described as too intimidating and did not involve carers.


Patients’ views have also contributed plans to develop a PREPARE centre where the whole programme can be delivered and patients can benefit from peer-to-peer support.




As the winners of the award, the PREPARE team worked with graphic illustrator Sandra Howgate to transform their written nomination into a visual image which will be printed into 3 A3 posters and 500 A5 postcards to share their experience and encourage others to work with patients. The final image demonstrates the value of bringing together ideas and knowledge from different perspectives.

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