posted 5 Sep 2017, 06:01 by Elis Gjegja

The infographic, which highlights and explains themes from our recent research on Sickle Cell Disease, was chosen as winner of the National Institute for Health Research (NIHR) ‘Let’s Get Digital’ Awards in the Infographic category.

P2745_Sickle Cell_Main Infographic_170517

Expert judge Robin Turton, Director at More Tea Design Ltd, said:


“The winning infographic has a really accessible quality – the sense of a scene being created invites the reader in, alluding to the idea that ‘people think nothing’s wrong’. It’s colourful in design and well suited to the broad public audience it’s intended for – congratulations to the team!

The competition aimed to recognise the ways people funded and supported by the NIHR can ‘get digital’ with their research, whilst raising awareness of research at the same time. Entries were invited across five categories – video, photo, infographic, online community and website.  Despite it being the awards first year, competition was strong; there were 165 entries to the competition, and 2251 public votes.


Amy Tallett, Head of Research at Picker, said:

“We’re thrilled to have received the award, and we’re pleased that it allows us the excuse to talk about the findings from the research once again. The research received over 700 responses making it the largest feedback drive of people living with Sickle Cell Disease conducted in the UK to date.”

“Ensuring that we understand the experience of people living with the condition as patients that receive treatment but also as people within families and communities is vitally important to their wellbeing.”

“Communicating the findings of the research in understandable and engaging ways is crucial to raise awareness of their often difficult experience of living with Sickle Cell Disease.”

The research, conducted in 2015, was commissioned by researchers from the NIHR Collaboration for Leadership in Applied Healthcare Research and Care Northwest London (CLAHRC NWL), in partnership with the Sickle Cell Society.

Focusing directly on patient experience, the survey asked patients about aspects of care that are important to them, including access to care services, information and support for their condition, and their views on care across inpatient, outpatient and emergency settings.

The results highlighted specific concerns about urgent care provision, with many people reporting less positive experiences of A&E attendance versus planned tertiary care.

Respondents felt that urgent care staff were not only less knowledgeable, but also less sympathetic and understanding of their needs, than their secondary care colleagues.

Participants also reported that their friends, family and co-workers did not know or understand enough about their condition and that they generally weren’t given enough information on coping with pain. Read more on the results.

John James, Chief Executive of the Sickle Cell Society, commented:

“Few people know that Sickle Cell Disease is the UK’s biggest genetic blood disorder with approximately 240,000 carriers.  Over 15,000 people in the UK live with the condition, and so it’s imperative that we continue to raise awareness of the experiences of these people, their friends and family, and their wider communities who live with it day in and day out.”

The infographic has been displayed and used frequently in the years since the Sickle Cell Patient Reported Experience Measure (Sickle Cell PREM) findings were published.

Ganesh Sathyamoorthy, of CLAHRC North West London, added:

“Our intention for the infographic was that it was a way of bringing the key findings highlighted in the research to life.  It is easier to ignore statistics such as, ‘86% of respondents’ feeling that their ‘family, friends and co-workers do not know or understand enough about their condition’, when they’re included in a report, but when they’re displayed in colourful infographics they’re harder to dismiss. Many remarkable NIHR funded research projects entered the competition and it is our honour to be chosen as the winners for the Infographics category. The fact that September is National Sickle Cell Awareness month, it is a great way to start the month on a positive and we hope this win can help bring our findings from the Sickle Cell PREM to new heights.”

Chris Graham, CEO of Picker, concluded “I’d like to congratulate everybody who entered and was shortlisted for the Let’s Get Digital awards, and I’d like to thank NIHR for recognising progressive and forward-thinking work in the healthcare research sector.”

“I’m proud of my staff for their work on this, and thankful to our partners in the Sickle Cell Society and CLAHRC North West London for their support and collaboration with us.”

Members of the media can contact Helen Thorne, Communications Manager at Picker, for more information on the research and the infographic, and to arrange interviews.


posted 15 Mar 2017, 04:42 by Derryn Lovett

"Lancet study puts NIHR top of the intl league table for health research in the public interest inc. public involvement @TheLancet"

"Yesterday the Lancet published a study by Mona Nasser, Mike Clarke, Iain Chalmers and others looking at how well eleven international research founders are doing to reduce waste in research. This follows a series of articles by Chalmers et al over the last couple of years on the same issue."


posted 14 Mar 2017, 09:12 by Derryn Lovett   [ updated 15 Mar 2017, 04:44 ]

How are the kids? Improving population child health and development

Professor Mitch Blair presents his inaugural lecture at Imperial College London


posted 12 Jan 2017, 03:04 by Lucy Ryan   [ updated 28 Apr 2017, 02:16 by Derryn Lovett ]

NIHR CLAHRC NWL Improvement Leaders Fellowship 2017

The eighth round of the CLAHRC NWL Improvement Leader Fellowship call will open in February. We will be inviting applications for the 2017 fellowship, with the deadline of 5pm Tuesday 2nd May. There are up to 10 places available for new fellows. The programme provides mentoring support, monthly meetings, and a work based project. Individual will be expected to commit one day per month for the fellowship meetings, and conduct their work based project one day per week. 

Key dates:

Applications deadline                          By 5pm on Tuesday 2nd May 2017

Applications to be submitted to           clahrc.nwl@imperial.ac.uk

Interviews                                            Week of 16th May 2017

Programme Induction event                29th & 30th June 2017

To read and download the application form, click here

To read and download the application guidance notes, click here

To read and download the flyer, click here.

If you have any questions, queries, or concerns, please contact us at clahrc.nwl@imperial.ac.uk

or for further information on our fellowship click here.


posted 9 Aug 2016, 02:18 by Derryn Lovett

Learning about healthcare professional-patient/public collaboration in quality improvement
We’d like to learn from the experiences of healthcare professionals and patients or members of the public, who have worked together to improve the quality of healthcare services, either for particular groups of patients, or in specific settings (for example, in GP practices, community settings or hospitals etc).
What is the purpose of this study?
We want to learn more about how healthcare professionals and patients, carers or the public (henceforth patients/public), work together in across a range of quality improvement initiatives. 
We’d like to hear from experiences of both healthcare professionals and patients/public who have experienced this way of working. This includes, healthcare professionals and patients/public working together as team members, or patients/public leading or being involved to improve healthcare design or delivery. 
We will be conducting semi-structured interviews, over the phone, skype or in person (where feasible), which will last no longer than 1 hour.
Please note, we are excluding initiatives that have used Experience-Based Co-Design, due to research which is already being carried out to explore this method.
If you would like to share your experiences, or would like further information/have questions, please get in touch with Meerat Kaur, m.kaur@imperial.ac.uk.


posted 1 Aug 2016, 09:02 by Derryn Lovett

The Brian Turley Award for Patient and Carer Involvement

Closing date 17th March 2017

We announce the inaugural Brian Turley Award for Patient and Carer Involvement. At our summer collaborative learning event on the 20th July, Rachel Matthews, Programme Lead for Patient and Public Engagement and Involvement introduced this new award which is open to improvement teams funded by CLAHRC NWL from October 1st 2015 and Improvement Leader Fellows who started in April 2016.
This inaugural award will be made in the memory of Brian Turley, a dedicated and committed patient advocate and disability rights campaigner. Brian became involved with NIHR CLAHRC NWL through ‘My Medication Passport’. Together with his mother Margaret, he was a passionate ambassador for the ‘My Medication Passport’.

Brian strongly believed the passport was a way to involve and engage people in their own care and to initiate better conversations with clinicians and other services including the police and the criminal justice system.

Sadly Brian died unexpectedly in February 2016 and we dedicate this award to his memory and as a way to sustain his values and commitment to patient engagement and involvement.


posted 22 Jul 2016, 07:59 by Derryn Lovett   [ updated 22 Jul 2016, 08:08 ]

Hounslow Community Atrial Fibrillation Screening Project

Announcing the roll-out of the innovative new community project  NIHR Collaboration for Leadership in Applied Health Research and Care Northwest London (CLAHRC NWL) , Chelsea and Westminster Hospitals NHS Foundation Trust, Hounslow Clinical Commissioning Group and the Arrhythmia Alliance which is set to reduce the risk of a stroke for Hounslow residents.

The project, funded by NIHR CLAHRC NWL and Hounslow CCG and is supported by several industry partners including Samsung and EE, aims to improve the detection and treatment of an abnormal heart rhythm, Atrial Fibrillation (AF), which affects 1  in 4 people over the age of 40 and causes 1 in 5 strokes.

The Hounslow Community Atrial Fibrillation (AF) Project is designed to improve the detection and treatment of AF which may not cause any symptoms. A portable ECG monitor called Kardia® Mobile (developed by AliveCor Ltd) which captures a single lead heart trace over 30 seconds is used to detect AF, to improve choice and speed of treatment. The project has been successfully piloted since February in 5 GP practices within Hounslow and has now been rolled out to all GP surgeries in the Hounslow CCG area.

A West Middlesex patient had a history of occasional palpitations of the heart but struggled to find a diagnosis.  Mr Pickles did not want to go down the route of a Holter monitor, a portable device worn continuously for at least 24 hours to monitor heart rhythm, and instead bought his own Kardia® Mobile ECG, which links with his smart phone. 
The roll-out of the project is timely as on June 17th Simon Stevens, Chief Executive of NHS England announced a new tariff for medical technology devices from April 2017 in a keynote address at the NHS Confederation Annual Conference in Manchester. Clearly primary care in Hounslow has already embraced this as a concept and are looking forward to seeing the benefits for Hounslow residents. 

For more information visit our website: clahrc-northwestlondon.nihr.ac.uk


posted 16 Jun 2016, 05:50 by Lucy Ryan   [ updated 21 Jun 2016, 02:14 ]

Summer Collaborative Learning Event
The Human Side of Quality Improvement

NIHR CLAHRC NWL welcomes you to our Summer Collaborative Learning Event on “The Human Side of Quality Improvement”. The event will be an opportunity to hear from national and international experts on quality improvement and learn from project teams currently undertaking quality improvement projects within Northwest London


posted 15 Jun 2016, 07:45 by Derryn Lovett   [ updated 15 Jun 2016, 07:46 ]

Round 7 Research Driven Improvement Projects awarded funding

We are pleased to announce £320,000 in funding that has been awarded to the following five Research Driven Improvement Projects (Round 7)

Ref No. IP018
Non- Invasive Ventilation - Improving outcomes and patient experience with understanding
Imperial College Healthcare NHS Trust - Susannah Bloch

Ref No. IP019
Time critical treatment for hand and wrist fractures: the virtual fracture clinic
Imperial College Healthcare NHS Trust - Raymond Anakwe

Ref No. IP006
Better information to improve the parent experience of neonatal care
Chelsea and Westminster Hospital NHS Foundation Trust - Chris Gale

Ref No. IP013
Implementation of the IBD registry database: acceptability, safety and effectiveness in specialised gastroenterology outpatient service
Northwest London Hospitals NHS Trust - Naila Arebi

Ref No. IP011
SHINE2 improving physical health care for people with severe mental health problems
Central and North West London NHS Foundation Trust - John Green


posted 3 Jun 2016, 08:03 by Derryn Lovett

Mapping research capacity activities in the CLAHRC community:
Supporting non-medical professionals

The Directors of the CLAHRCs agreed in July 2015 to support a joint piece of work on articulating the role that CLAHRCs play in supporting non-medical clinicians. This report jointly written by CLAHRC Yorkshire & Humber and CLAHRC Northwest London has more detail of services and initiatives that will be useful to those interested in building capacity in Nursing, Midwifes and Allied Health Professionals.

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