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Empowering parents with babies requiring use of neonatal intensive care units (NICU)

1 in 8 babies born in the UK will need to be admitted for neonatal care. Having a baby in intensive care is something no parent is prepared for. Parents are scared and worried, they don’t always understand the medical details of what is happening and feel unable to help their vulnerable babies. A 2014 National Neonatal Survey highlighted poor communication between healthcare professionals and parents of infants on NICU. <50% of parents are able to speak to a doctor when they want to.

This study aimed to improve communication with parents at Chelsea and Westminster Hospital Foundation Trust using our systematic approach to co-design an information booklet with parents on NICU. Dr Sakonidou, BUDS improvement
project lead, was awarded an NIHR doctoral research fellowship (£353,415 of which £71,250 is for Patient Public Involvement) to develop this research. Project team member, Ms Sophia Kotzamanis, parent adviser, Brian Turley Award winner for patient and carer involvement, successfully received a position on the NIHR CLAHRC NWL Improvement Leader Fellowship 2018.

The Journey

Graphic Illustrator: Sandra Howgate